CYSTIC FIBROSIS/TRANSPLANT FINANCIAL RESOURCES
Patient Assistance Programs for
Cystic Fibrosis Patients and Families
Thanks to CF Education Day participant Mia Hinojosa Lacy for compiling
this important list of resources.
Cystic Fibrosis: Fitting CF Into Your Life Everyday
American Organ Transplant Association. Helps with travel expenses for transplant recipients and families. Request must come from Transplant Social Worker or Transplant Program Coordinator. Advice and help setting up and administering transplant trust funds for 3% fee.
Fundraising resources. Fundraising ideas or grants for CF or transplant related cause.
TOBI Foundation.
The TOBI Foundation was established in 2003 because Chiron is aware of the
often difficult financial circumstances of cystic fibrosis patients and their
families. With Chiron’s generous donation of medication and funding, the
Foundation was established to help patients in financial need gain access to
this critical medication.
Genentech, Inc. Makers of Pulmozyme with an Endowment Program for CF.
Pharmaceutical Research and Mfrs. of America. Rx. patient assistance programs.
Scandipharm. Comprehensive Care Program for CF.
National Transplant Assistance Fund (NTAF) Provides vital transplant and donor organ information, financial assistance, fundraising advice and trusteeship.
Foundation for Transplants. (Formerly Organ Transplant Fund.) Helps those seeking a new life through transplant. Provides healthcare services, financial assistance and advocacy programs to transplant candidates, recipients and their families.
The National Association of Hospital Hospitality Houses, Inc. non-profit corporation developed to serve existing facilities which provide lodging and other supportive services to patients and their families due to medical emergencies.
We want your help!
If you find a great cystic fibrosis resource and it is not listed in our cystic fibrosis online resource section, please e-mail us at info@esiason.org and we will add it to our list. |
