CYSTIC FIBROSIS PHONE RESOURCES
Americans With Disabilities Act: To learn how the Americans with Disabilities Act (ADA) applies to you, contact the Disability Rights Education and Defense Fund (DREDF) at 1-800-455-4232 between the hours of 9 a.m. and 3 p.m. Pacific Time. The DREDF has received a federal grant to inform individuals who may be subject to discrimination of their rights and remedies. To report a violation of the ADA, call the Equal Employment Opportunity Commission (EEOC) at 1-800-669-3362.
Transplant Recipients International Organization, Inc. (TRIO): An independent, non-profit, international organization committed to improving the quality of life of transplant recipients and their families and the families of organ and tissue donors. For information write: TRIO, 1000 16th St., Ste 602, Washington, DC 20036-5705. Or call: 1-800-TRIO-386.
United Network For Organ Sharing (UNOS): Phone: 1-800-24-DONOR. Call for information on transplant centers, access for all patients needing organ transplants and general transplant information.
PathoGenesis Corporation, manufacturer of the cystic fibrosis drug TOBI.
201 Elliot Avenue West
Seattle, WA 98119
Phone: (206) 467-8100
Web:
http://www.pathogenesis.com
Genentech Inc., manufacturer of the cystic fibrosis drug Pulmozyme.
1 DNA Way South
San Francisco, CA 94080-4990
Phone: (650) 225-1000
Web:
http://www.genentech.com
For information on
free prescription drugs provided by pharmaceutical companies, call the U.S. Senate Special Committee on Aging at (202) 224-5364 and request information on the "Program to Help Old Americans Obtain Their Medication." Use this information to contact the appropriate drug companies and request information on their indigent patient programs.
Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
Phone: (301) 951-4422 or (800) FIGHT-CF
Fax: (301) 951-6378
E-mail:
info@cff.org
Important: Please include your full mailing address, phone number and fax number in all electronic correspondence. Not all information can be electronically communicated. If we are unable to reach you via e-mail and you have not provided this information, we may not be able to fulfill your request.
CF Association of Western Australia
Oasis Lotteries House
37 Hampden Road, Nedlands 6009
Phone: (09) 389 8766 or (800) 678-766
Fax: (09) 389 8768
Canadian Cystic Fibrosis Foundation
2221 Yonge Street, Suite 601
Toronto, Ontario M4S 2B4
Phone: 416 485 9149
Fax: 416 485 0960
