"I try to reassure everyone who has been affected by this disease that CF isn't the end of the world if you don't want it to be."
The experience of living with cystic fibrosis is markedly different today than it was decades ago. Thanks to the discovery of the CF gene, the availability of effective drug therapies and advances in technology, the 30,000 Americans who deal with the disease day in and day out are living longer and fuller lives. In a word, they are thriving.

Jenny Davison

Jenny Davison is a former pediatric nurse who today finds joy and inspiration in watching her daughter grow up. Jenny encourages people with CF to share their stories in the hope of increasing awareness about the disease and funding for programs benefiting CF families.

Jenny’s Story

“I am in my early 40s and have cystic fibrosis. I am the youngest of nine children, three of which had CF. Growing up in a big family, there was no time to feel sorry for one single person, so I was treated like everyone else. In retrospect, I believe this helped build my strength and character. I have always been very independent and a hard worker. After high school, I attended the Fashion Institute of Technology in Manhattan. I received a degree in textiles development and marketing and worked for a short time in the fashion industry. I quickly realized my true desire was to help people, and returned to school to become a registered nurse. I was able to maintain a career in nursing for more than 10 years, working in the pediatric ICU and the recovery room before I had to stop working. The decision to stop working, although very difficult, was the right choice for me.”

Jenny on Family

“Family has always been very important to me. I met my husband at a very young age and the decision to marry was an easy one. The decision to start a family was obviously much more difficult. We decided that if Tim was a carrier, we would not have any children. But, he is not, so we went for it. Luckily, at the time I was healthy enough to sustain a pregnancy for nine months. Our daughter was born without any complications and is now a healthy 12-year-old girl! Having my daughter, Dara, was for me, the best decision I ever made. She has brought so much joy to our lives!”

Jenny’s Mission

“To be a wonderful wife and mother to my beautiful daughter, Dara ... I want to stay healthy and strong and watch my daughter grow up, attend college, have wonderful relationships, and hopefully get married and have a family.”

Jenny’s Advice

“I recommend to all people with CF that you get out there and live your life without putting any restrictions on yourself. Being active is the key to a good quality of life. I have always enjoyed skiing, swimming, riding my bike, whatever will take me outdoors and allow me to feel alive!! Just because you have CF doesn’t mean you have to stop living your life. I have always felt that I was going to do what everyone else does; I just have to work a little harder at it.”

A Fun Fact About Jenny: Her favorite movie is “My Cousin Vinny.”

Because of BEF ... “Because of BEF, there is a heightened awareness of cystic fibrosis and what its victims must endure on a daily basis. Hopefully, the continuation of people’s stories will gain even more interest and, hopefully, more funds to work toward bettering the lives of CF patients and their families.”

Favorite Holiday:  Christmas
Favorite Food:  Ice cream and pizza
Favorite Movie:  My Cousin Vinny
Role Model:  My mother
Favorite Color:  Orange
Proudest Moment:  Getting married and giving birth to my child
Dream Vacation:  Australia