"The quiet courage and determination of CF families inspires me; it is for these families that we work day in and out."
The experience of living with cystic fibrosis is markedly different today than it was decades ago. Thanks to the discovery of the CF gene, the availability of effective drug therapies and advances in technology, the 30,000 Americans who deal with the disease day in and day out are living longer and fuller lives. In a word, they are thriving.
  • Colleen Caul
    “If I could give anyone affected by cystic fibrosis advice, it would be this: It is not the end of the world. The disease is manageable and there are breakthroughs being made every day. Keep your hope and always remember to run, run, run!”
  • Josh Mogren
    “I will continue to share my story and try my best to touch as many lives as possible by always going by my motto, 'I rather try and fail, then fail to try.' ”
  • Keith Connolly
    "I plan to continue staying healthy by planning out my days and staying motivated to beat this disease. I see a cure in the future, and I can only hope that I am here to witness that day!"
  • Elizabeth Clark
    “I have made it a point to raise my children to grow and be self-sufficient.”
  • David Wagner
    “I am extremely happy with my life and I would like to show by example to others that life with CF can be a happy one!”
  • Valerie Batz
    “Life after a bilateral lung transplant has truly been a blessing. There is no coughing, and I feel like my lungs are two brand new beautiful pink balloons, as opposed to the old smashed ones I used to have.”
  • Kay Wharton
    “I am very thankful that growing up I never knew the life expectancy of having CF, because I never had a number in my head to hold me back from what I wanted to do.”
  • Karen Vega
    “CF has not determined my life for me, I have determined it for myself, and I am forever grateful.”
  • Brian Johnson
    “I was born with CF, I’ve lived with it my whole life, it’s all I’ve ever known, it is my life!”
  • Dottie Lessard
    “That’s the message for the kids and their parents: You can do anything.”
  • Bob Esparza
    “We realized there’s a difference between living with the disease and living your life.”
  • Bryan Pendarvis
    “I have career goals, a great family, lots of friends, and a long-time girlfriend. I’m staying positive.”
  • Jenny Davison
    "I want to stay healthy and strong and watch my daughter grow up."
  • Jerry Cahill
    "My life is not about CF."
  • Dan Palumbo
    "Tell your story and get the word out."
  • Gunnar Esiason
    "CF isn't the end of the world."
  • Steve Bell
    "I'm determined, I fight, and I prevail."
  • Andrea Eisenman
    "I'm doing things that I never expected to do."
  • Chad Brown
    "It was the first time I felt like I had someone on my side..."
  • Kayte Tranel
    “Although I cannot control many aspects of my life, I have a desire to work hard and focus on the things that I am capable of achieving.”
  • Don Warner
    “You never completely get over the loss of a child. You learn to live with a broken heart, and you try to stay connected to family and friends.”
  • Joan Finnegan Brooks
    “I have never viewed CF as a burden.”
  • Kurt Zimmerman
    “If I am studying, I use my treatments as a study break. Or if I am hanging out and watching a movie, I will put my vest on.”
  • Cris Dopher
    “Keep moving forward.”
  • Paul Drury
    “Live in the now.”
  • Tiffany Christensen
    “It’s not how many breaths you take, but the moments that take your breath away.”
  • Laura Tillman
    “The Essence of Compassion: Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and wrong ... because sometime in your life you will have been all of these.”