"I try to reassure everyone who has been affected by this disease that CF isn't the end of the world if you don't want it to be."
The experience of living with cystic fibrosis is markedly different today than it was decades ago. Thanks to the discovery of the CF gene, the availability of effective drug therapies and advances in technology, the 30,000 Americans who deal with the disease day in and day out are living longer and fuller lives. In a word, they are thriving.
  • Catherine Hopkins
    Catherine Hopkins is the mother of three young boys, one of whom has cystic fibrosis, who juggles a full time career along with her job as mother and caregiver.
  • Colleen Caul
    “If I could give anyone affected by cystic fibrosis advice, it would be this: It is not the end of the world. The disease is manageable and there are breakthroughs being made every day. Keep your hope and always remember to run, run, run!”
  • Elizabeth Clark
    “I have made it a point to raise my children to grow and be self-sufficient.”
  • Bob Esparza
    “We realized there’s a difference between living with the disease and living your life.”
  • Don Warner
    “You never completely get over the loss of a child. You learn to live with a broken heart, and you try to stay connected to family and friends.”