"I try to reassure everyone who has been affected by this disease that CF isn't the end of the world if you don't want it to be."
The experience of living with cystic fibrosis is markedly different today than it was decades ago. Thanks to the discovery of the CF gene, the availability of effective drug therapies and advances in technology, the 30,000 Americans who deal with the disease day in and day out are living longer and fuller lives. In a word, they are thriving.

Kay Wharton

Go to Kay's May 2011 podcast with BEF's Jerry Cahill.

Kay's Story

Growing up as a child, I was the only one with a full size Kleenex box on my desk,but that did not phase me. I just thought I got sick a lot, and I had asthma. That was not the case, and I found out at the age of 21 that I had cystic fibrosis. Not only was I diagnosed with CF, but my sister was diagnosed at the same time at the age of 29. We were two of four girls - myself being the youngest of the four - and we were the only two with CF.

By the time I was diagnosed, I had already made it through my childhood years, and I was very lucky to be as healthy as I was without being treated for all those years. In school, I participated in track, partly because it was the only non-cut team! I believe that running track for the years that I did helped in the clearing of my lungs, as I coughed a great deal. After high school, I went on to college at Purdue University. This was a family tradition, and everyone in my family attended Purdue as well. I studied Industrial Illustration Technology in college, and after several jobs and lots of experience, I started my own business in print and web design (www.Wharton-graphics.com), and I am able to work from home.

Kay on Family, and the Future

Not only have I been lucky enough to have a successful career, I was also blessed with a wonderful family. I have been married to my husband, Randy, for 22 years, and we have a beautiful 20-year-old daughter, Ashley, who is attending the University of Missouri - Columbia. My husband has been such a positive influence on my life, and both he and my daughter are into exercising and will be running a half-marathon soon. Exercising has gotten tough for me, as I recently started using an oxygen tank, but I hopefully see myself participating in a 10K down the road! I would say that my biggest accomplishment was completing a triathlon.

I am very thankful that growing up I never knew the life expectancy of having CF, because I never had a number in my head to hold me back from what I wanted to do. I always say, “Health isn’t just the absence of disease; it is a combination of mental, physical and social well-being…you can be a healthy Cf’er!” Life with CF is what you make of it, each day is a blessing and you have to take it one step at a time. My first goal was to see Ashley graduate high school, then it was seeing her graduate college, and I am so thrilled to say that I now need another new goal ...

A Fun Fact About Kay: Her favorite foods are cantaloupe and dark chocolate.

Favorite Holiday: Fourth of July

Favorite Pastime: Drawing and painting

Favorite Movie: The Pursuit of Happiness

Favorite Music: Adele

Favorite Color: Green

Role Model: Parents

Dream Cacation: Cape Cod

You can find Kay on: Facebook, Great Strides, CF Choice

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