I had a pretty normal life growing up – playing sports, hanging out with friends, going to school, working, and eventually going to college. My disease – cystic fibrosis – didn’t really affect the way I lived for most of my life. It wasn’t until I was in my mid-20s that my health hit a wall, and started a slow, constant decline.
My lung function eventually dropped to the point of no return, so my doctor, Bruce Ludwig of the University of Tennessee Adult CF clinic, helped me start my transition to Duke University Transplant Center. I relocated to North Carolina in late December so that I could enter into the Duke transplant program and start working with Dr. John Reynolds to activate my name on the transplant list.
My mom, Cindy, relocated with me to North Carolina to act at my caretaker, and remained there for six months as my support system through the entire transplant process. My friend, Tyler, not only called daily and visited as often as possible, but he also raised funds to help cover some of my expenses.
On February 26, I got the call; I had a new set of lungs – a fresh start at life. While my recovery has had some hiccups, I feel stronger, healthier, and more determined than ever to live my life to the fullest.
As I have gotten older, I have become more and more involved in the CF community – taking inspiration from people like Jerry Cahill and Gunnar Esiason, who both have such encouraging stories. The Boomer Esiason Foundation has had such a huge impact on the world of cystic fibrosis – a very rare disease that didn’t always have a voice. I have friends and family in Cincinnati, and they all remember when Boomer stepped out and became an active advocate for all those with CF – and has never faltered in his quest to support the CF community and to find a cure. We are so close to the cure, and I hope to see it in my lifetime; but until then - I know the Boomer Esiason Foundation will work tirelessly until CF stands for Cure Found.
Give the Gift of Education:
A double lung transplant is a reality most people who have cystic fibrosis have to face at some point in their lives. The Boomer Esiason Foundation Transplant Grant Program exists in order to ease some of the financial burden that insurance does not cover when going through that lengthy, costly process.