Gunnar’s Blog

My Experience with Cystic Fibrosis

“I want to use this blog to share some of my experiences so that hopefully when you, whoever you are, read this you can see the world as I see it. You can appreciate life as a whole. I want you to laugh and have fun while you read, I do not want you to feel sorry for me, or feel like the world is some cruel unfair place. The truth of the matter is that I was dealt a certain hand of cards, and I am making the best of it.”

Breathe In Podcast

  • Breathe In #98 - The Legal Marriage Question
    This week on Breathe In, Tiffany is on her own again while Gunnar battles his way through final exams. Tiffany is joined by a new voice on the podcast, Holly Seay, 24, from Georgia, a newlywed with CF. Holly takes us through her life with CF and how she met… Listen In
  • Breathe In #97 - Misdiagnosed
    On this episode of Breathe In, Gunnar takes the day off and Tiffany takes over with a returning guest, Audrey Kostelec, 23 from Washington State. You may remember Audrey from the emergency podcast we had on FaceBook Live in March. This time we talk about Audrey and her CF journey.… Listen In
  • Breathe In #96 - The Triple Combo
    A mere few days following the FDA's approval of Trikafta, cystic fibrosis patients across the United States began dosing. This week's podcast looks back at Gunnar's time in the triple combo study. Think of this podcast as a follow to Gunnar's blog over on Gunnar talks about both the… Listen In


  • That Time a Healthcare Provider Accused Me of Being a Drug User
    One of the strangest hospital stays I have ever been through was a time when a care provider accused me of being a drug user. Let the record show that I am NOT a drug user. Let the record show that what follows ended up being an important life lesson… Read More
  • 5 Ways My Quality of Life Has Improved on Trikafta
    So much of how we evaluate success of various medications is based on objective efficacy. Has the patient’s FEV1 improved? What about BMI or sweat chloride? It goes without saying that efficacy is critical when looking at treatment routines and options, but I think one of the major things that’s… Read More
  • A Few (Realistic) Expectations for the Next Decade of Cystic Fibrosis Care
    The 2010’s saw the dawn of the modulators. In a remarkable feat of drug development, four cystic fibrosis-specific medications came to market from the test tube: Kalydeco, Orkambi, Symdeko and Trikafta. (If you want to blow your mind, look at the generic names of the drugs included in the modulators… Read More