"I want to use this blog to share some of my experiences so that hopefully when you, whoever you are, read this you can see the world as I see it. You can appreciate life as a whole. I want you to laugh and have fun while you read, I do not want you to feel sorry for me, or feel like the world is some cruel unfair place. The truth of the matter is that I was dealt a certain hand of cards, and I am making the best of it."

Gunnar Esiason

Recent Podcasts

Breathe In #51 - SEASON 2 - World Travel

Breathe In kicks off Season 2 with an episode dedicated to world travel. Lea just returned home a trip to Europe, while Gunnar is coming off a month and half worth of business trips. The trio recognizes that traveling with CF can be a stress point, especially because of packing and repacking medications before and during a trip. Lea and Tiffany say they organize their medications by each day when they pack. Gunnar, on the other hand, organizes his medications into their delivery methods - oral vs. inhaled. The group also talks about the importance of being transparent with airlines, airport workers and security agents. Finally, Tiffany (of course) brings Taylor Swift into the conversation, but Gunnar and Lea talk about their displeasure with her last album.

Breathe In #50 - The Lighter Side of Cystic Fibrosis

Cystic fibrosis is a brutal, unrelenting illness, but there is a lighter side to the disease. Like anything in life, simple mistakes or seemingly very serious experiences can also be funny. Gunnar, Lea and Tiffany tell of a few times when cystic fibrosis led to uncontrollable laughter, from recovery room stories, to the "smelly side" of CF, uncomfortable conversations and a number of awkward moments. The trio also agrees that humor is an effective coping mechanism and hopes that others are able to look back on some very serious moments and laugh!

Breathe In #49 - Guilt

The trio talks about the times they've experienced guilt in dealing with CF. Guilt comes in many ways, and as Gunnar says, isn't generally recognized until after the fact. He thinks guilt masks itself as frustration or anger. Guilt seeps into their lives mostly when they are sick and they feel like people are making unusual accommodations. Lea mentions that guilt is one of her most difficult challenges to deal with. She talks about having a hard time articulating her guilt to her support system and struggles with accepting helping. Tiffany talks about the days before her transplant when she was entirely reliant on her parents to survive. How does guilt impact your life with CF?

Recent Posts

Why Does The UK Put a Lower Value on The Life of a CF Patient Than The Rest of The World?

Amy is back with part two of her discussion concerning access for CFTR Modulators. Today we take a look at what’s preventing people with CF from gaining access to Orkambi in the United Kingdom I’m a DF508 heterozygote and therefore don’t have a CFTR modulator that will work for me (hopefully late 2019 it will

The post Why Does The UK Put a Lower Value on The Life of a CF Patient Than The Rest of The World? appeared first on Gunnar Esiason Blog.

Use a Movie Title To Describe Your Last Bowel Movement

Standby for a poop blog! Yesterday I was at clinic for a routine visit, and part of that visit included a sonogram. Actually… believe it or not, October is Medical Ultrasound Awareness Month. Did you know that? I didn’t. Anywhoooo…I decided to make light of that part of my trip and play a little game.

The post Use a Movie Title To Describe Your Last Bowel Movement appeared first on Gunnar Esiason Blog.

It is Possible to be 100% Compliant With Your CF Treatments – You’re Wrong If You Think Otherwise

Is it a pain in the ass to find time do treatments? Is it annoying to spend hours each month on the phone with pharmacies and the insurance company? Have you stuck yourself far too many times with a syringe while trying to reconstitute a medication? Have you ever considered skipping a treatment just so

The post It is Possible to be 100% Compliant With Your CF Treatments – You’re Wrong If You Think Otherwise appeared first on Gunnar Esiason Blog.

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