Nick Di Brizzi joins the podcast for a special Organ Donation Awareness Month show. Nick, 37 with CF, is about 2 and a half years post double lung transplant. Nick talks about his journey through transplant, including an emotionally tolling “dry-run.” He also talks about his Fight Like a Boss documentary and Breathe Like a
Mental Health is sort of the hot button topic in the CF world these days. Finally… I might add. It seems like just within the last few years someone, somewhere was like, “you know what… all these families might be dealing with some issues from the stresses and anxieties that go along with rigorous daily
The post How Can We Improve Mental Health In The Cystic Fibrosis Community? appeared first on Gunnar Esiason Blog.
I got an interesting question from the audience at my CF Family Education Day talk last weekend – “What roles do your parents play in your fight against CF now that you’re an adult?” The short answer is that both of my parents are still very involved. My mom remains my first line caregiver in
The post How Should a Parent’s Role Change Through the Years? appeared first on Gunnar Esiason Blog.