Advocacy

The Boomer Esiason Foundation is a patient advocacy leader for the cystic fibrosis community, fighting to give patients and families a voice. The Foundation believes strongly that all CF patients, and other rare disease patients, deserve equitable access to healthcare and access to life-changing drugs, the ability to critique the cost of healthcare, and the right to defend their own needs. The Foundation seeks to serve as a leader on all of these fronts with its commitment to people with CF and their families.

February 28, 2024

Patient Voices