"I want to use this blog to share some of my experiences so that hopefully when you, whoever you are, read this you can see the world as I see it. You can appreciate life as a whole. I want you to laugh and have fun while you read, I do not want you to feel sorry for me, or feel like the world is some cruel unfair place. The truth of the matter is that I was dealt a certain hand of cards, and I am making the best of it."
Recent Posts
Breathe In Ep. #34 – Mail Bag: Farting, Working in Healthcare, Achieving Goals and Confidence
The trio answers some questions from their listeners. How to approach farting in front of a new boyfriend or girlfriend? Do you ever feel guilty from being sick and having to miss out on a commitment or promise? What’s it like for Lea to work as a nurse? What were a few things that your
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Right to Try to be Signed Into Federal Law
As I said earlier this week, we’d be getting a Right-to-Try vote in the House, and well, we got that vote. Last night the House voted to approve the bill and will now send it to President Trump’s desk for his signature (it’s pretty much guaranteed conclusion that he will sign it). As reported by
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I Want The Cystic Fibrosis Foundation CF Patient Registry To Be An Open Source
The Patient Registry might be the most important innovation from CFF in its history. It’s one of the main reasons that we are seeing the kind of success that we all enjoy today. From CFF: Since the 1960s, the CF Patient Registry has collected information about people with CF who receive care at CF Foundation-accredited care
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