Somer Love is back on the podcast to talk about her open letter to family and friends about the holidays and cold/flu season. Gunnar, Tiffany and Somer chat about some of the precautions they take when it comes to health and safety during family gatherings and how they communicate their needs to their family and friends. The three discuss a recent tweet from Seth MacFarlane and how some people have been offended by his seemingly offhanded comment about coughing in public spaces. Tiffany also mentions that her friends are very aware of her immunosuppressed status following transplant. Finally the conversation ends with a few words about discussing some healthy habits in places of mass transportation.
Tiffany's lifelong best friend, Kelsey Sleek, joins the podcast to celebrate Tiffany's 2nd lungiversary! On November 30, 2016, Tiffany was wheeled into the operating room for a life saving double lung transplant, and her life has changed for the better ever since. Kelsey talks about the support system side of cystic fibrosis and what it was like to be there for Tiffany through the up's and down's and then eventually, the several year wait on the transplant list and through the surgery itself. Tiffany, who gets a bit emotional (which leads to an entire podcast meltdown!), talks about what it meant to have such a strong support systems in the midst of such a challenging time. She even says that it felt like she wasn't the only one with CF - her friends had it, her parents had it and everyone in between - because everyone in her life went through the same difficult journey to get her to the transplanted lungs. Join us in celebrating Tiffany's 2nd lungiversary!
Tiffany and Lea chat with Miss Los Gatos 2019, Camille Hunziker, a 22 year old pageant queen who has dedicated her time raising awareness for cystic fibrosis as a “Queen for a Cure.” The girls ask about how Camille got into pageants. She explains how the pageants work and how it’s been such a positive addition to her life with confidence. Camille shares how she got involved with the CF community and how “Queen for a Cure” came to be. She talks about how special the community is to her and what her plans are for her advocacy in the future. Camille is on her way to Miss California competition, where she has competed before and made it to the Elite 20. She shares her plans after the competition if she wins!
Somer Lover is back on the podcast to talk about her open letter to family and friends about the holidays and cold/flu season. Gunnar, Tiffany and Somer chat about some of the precautions they take when it comes to health and safety during family gatherings and how they communicate their needs to their family and
As empowered patients, it is our jobs to work with our care teams, not blindly take their word as fact. The very best doctors in CF are the ones who listen to their patients and create plans with them. I learned this lesson the hard way when I was in pediatrics. My final year as
The post Saying, “Well my doctor said…” Diminishes Your Role as an Empowered Patient appeared first on Gunnar Esiason Blog.
Happy Monday, folks! It’s been a hot minute since we’ve had a Monday Morning Thoughts blog post, but shit happens. What can I say? Chronic infection is a killer in cystic fibrosis. It’s widely accepted that although infection rates are slowly decreasing across the community (maybe thanks to kids getting on CFTR modulators before their
The post Are Phages the Answer to Debilitating Cystic Fibrosis Infectious Disease? appeared first on Gunnar Esiason Blog.