Call to Action
Help us help those with Cystic Fibrosis. Here are just a few ways that you can step up in the fight to find a cure.
Fully Fund New York State’s Adult
Cystic Fibrosis Assistance Program
ATTENTION ALL NEW YORKERS: Funding for New York State’s Adult Cystic Fibrosis Assistance Program (ACFAP) is not included in the current New York State budget for SFY 2026-2027.
This program provides copay assistance for medical care related to CF, including prescription drug and device costs, and medical and behavioral health services, and insurance premium assistance to include medical, vision, and dental premiums.
Contact your elected officials to include full funding for the New York State’s Adult Cystic Fibrosis Assistance Program (ACFAP) in the 2026-2027 budget. You can find your state Assemblymember here and your state Senator here.
HELP Copays Act
Support the HELP Copays Act! In December 2025, the Help Ensure Lower Patient (HELP) Copays Act was reintroduced in the House of Representatives and the Senate. The HELP Copays Act is a bipartisan bill that would ensure that all copay assistance goes toward meaningfully lowering out-of-pocket costs for patients who rely on brand-name medications without generic alternatives.
Contact your Senators to encourage their support of the HELP Copays Act!
PASTEUR Act
People with CF often need to be treated with antibiotics regularly from a young age to fight off infections in the thick, sticky mucus in their lungs, so they are at an elevated risk of their infections becoming more and more resistant to drugs over time. The PASTEUR Act is a proposed bill that supports investment in new treatments for antimicrobial resistant infections.
Contact your legislators to encourage their support of the PASTEUR Act!
Donate Life
You can save lives by becoming an organ donor today! In 2023, 23,286 donors led to 46,630 transplants. As a donor, you have the power to save up to 8 lives through organ donation and heal up to 75 people through tissue donation.
Donate Life America has resources to register and to learn more about organ donation.
Share Your Story
We love to see what you do and how you share your passion for BEF and advocating for cystic fibrosis. Share your story with us below.
And if you share your story on social media, be sure to tag us @boomeresiasonfoundation
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