Advocacy
The Boomer Esiason Foundation is a patient advocacy leader for the cystic fibrosis community, fighting to give patients and families a voice. The Foundation believes strongly that all CF patients, and other rare disease patients, deserve equitable access to healthcare and access to life-changing drugs, the ability to critique the cost of healthcare, and the right to defend their own needs. The Foundation seeks to serve as a leader on all of these fronts with its commitment to people with CF and their families.
-
Antimicrobial Resistance by: Katherine Black
December 10, 2024Antimicrobial Resistance Written by: Katherine Black Imagine you become sick with an ear infection, a common experience for many people, but when you go to the doctor they tell you not only that your infection’s bacteria is resistant to the typical antibiotic prescribed, but also......
Read more -
Incentivizing Innovation: A Better Approach to Drug Affordability by: Mac Rung
December 10, 2024Incentivizing Innovation: A Better Approach to Drug Affordability Written by: Mac Rung If you take a look at the world’s leading pharmaceutical companies, even among the vast diversity of products a striking commonality emerges: the majority are American. Despite this, public sentiment towards pharmaceuticals seems......
Read more -
Shared Decision Making & Care Guidelines by: Mallory Holloway
December 10, 2024Shared Decision Making & Care Guidelines Written by: Mallory Holloway As someone living with cystic fibrosis, I’ve spent countless hours of my life in and out of doctor’s offices. While my journey has been shaped by numerous healthcare professionals as well as my care team,......
Read more -
The Value of Medicines and Who Decides It by: Kashvi Kapoor
December 10, 2024The Value of Medicines and Who Decides It Written by: Kashvi Kapoor Medicines save lives. They improve health, extend lifespans, and allow people to live fuller, richer lives. But the true value of a medicine is often much more than the pill in a bottle......
Read more
Patient Voices
