Cystic Fibrosis Centers and Programs

From day one, the Boomer Esiason Foundation has supported researchers, cystic fibrosis centers’ staff, and all caregivers; BEF pledged to assist those teams financially so that they have access to the latest technology and research in order to best serve the cystic fibrosis community.

2019

NewYork-Presbyterian/Columbia University Medical Center

Gunnar Esiason Adult Cystic Fibrosis & Lung Program

Established in 2009 with a grant from BEF, this program has become the premier site for adult CF care and research in the NYC metropolitan area. In 2019, BEF also supported a Nurse Practitioner to assist the increased research and drug studies for people with CF and the growth of the center to more than 260 patients.

 

Columbia Center for Translational Immunology and the Lung Transplant Program

Columbia University Irving Medical Center is leading a first-of-its-kind effort to teach the immune system to tolerate transplanted lungs without the need for immunosuppressant medications, through its Columbia Center for Translational Immunology and the Lung Transplant Program. In 2017, with lead support from the Boomer Esiason Foundation, a complex research protocol was started with a concomitant lung and bone marrow transplant model with the goal of tricking the recipient’s immune system to accept transplanted lung(s) as self and eventually eliminating long-term post-transplant complications, particularly rejection and infection.

Over the past year, physicians and scientists at Columbia have been testing and refining this research through a series of studies which are hoped ultimately to lead to a dramatic change in quality of life and longevity for patients who receive a lung transplant.

Northwell/Cohen Children’s CF Medical Center

BEF’s continued investment in Cohen Children’s Medical Center has had a transformative impact on its pediatric cystic fibrosis care by advancing its mission in several ways – helping launch a new pilot program in gastroenterology and nutrition, realizing the new Center home in Lake Success, expanding the clinical research capacity, and new & more comprehensive clinical services to the largest pediatric CF population on Long Island.

Drexel

BEF is proud to be funding a multi-site randomized control trial assessing the efficacy of a contemporary “third wave” mental health intervention for people with cystic fibrosis, versus traditional talk therapy.

CF Roundtable

BEF supports the mission of United States Adult Cystic Fibrosis Foundation (USACFA) to expedite the exchange of information among adults with CF and provide a nationwide network of support between those with CF, their families, and health care providers. Thanks to the BEF’s sponsorship, CF Roundtable – USACFA’s quarterly newsletter – is distributed to all who subscribe free of charge. The newsletter has a distribution of over 6000 annually and averages 32 pages of information on all aspects of CF including medical, research, legal, coping, focus topics, transplant, and more.

CFRI

In 2019, BEF was a proud sponsor and supporter of the 32nd CF Education Conference, an annual three-day conference hosted by CFRI that provides adults with CF, caregivers, healthcare providers, and researchers the opportunity to hear from national experts in the field of CF about current and pipeline therapies, new research, the importance of being medically adherent, as well as psychosocial and physical health quality of life strategies. With the support of sponsors, CFRI was able to off online attendance at no cost to individuals with CF, their caregivers, and immediate family members.

CF Lifestyle Foundation

BEF is a two-year event sponsor of the CFLF New England Craft Beer Open, a consistently sold out golf event. BEF expanded its sponsorship into the 12th Annual Champ’s Challenge for Cystic Fibrosis cycling event. BEF and CFLF are proud partners in promoting the importance of incorporating fitness into CF patients’ care.

Rock CF

For the last several years the Boomer Esiason Foundation has been an integral sponsor for the annual Rock CF Rivers Half Marathon, 10 Miler, Relay, and 5K Run/Walk. BEF has been the relay sponsors and in 2018 signed on as the new 10 Mile race sponsor.

CF Yogi

With BEF’s support, CF Yogi has had over 800 people register, 200 of which signed up within two weeks of the partnership announcement. The funding allowed F Yogi to hire an additional instructor and bring on a yoga teacher-in-training as well.

Other Programs in 2019

Take a Breather Foundation

BEF teamed up with the Take a Breather Foundation for its Beach Dash. Because of the sponsorship, the TaBF has been able to fulfill a “breather” request for a 26 year old cystic fibrosis patient from the Penn CF Care Center.

 

Laps to Breathe

BEF has partnered with Harrill Motorsports in an effort to spread CF awareness and BEF brand awareness in a new, untapped community – the racing world.

2018

NewYork-Presbyterian/Columbia University Medical Center

Gunnar Esiason Adult Cystic Fibrosis & Lung Program

Established in 2009 with a grant from BEF, this program has become the premier site for adult CF care and research in the NYC metropolitan area. In 2018, BEF also supported a Nurse Practitioner to assist the increased research and drug studies for people with CF and the growth of the center to more than 260 patients.

Boomer Esiason Foundation Organ Care and Recovery Unit
BEF, dedicated to the health and recovery of CF patients who need transplants, sponsored this unit at CUMC to help further research in transplants, organ care, and organ recovery.

Cincinnati Children's CF Center

With BEF funding, the CF Center at Cincinnati Children’s has developed two programs – BETTER-CF (Behaviors, Emotions, and Thoughts to Enhance Resilience in cystic fibrosis) and Ensuring School and Professional Success – that are aimed at preparing patients and their families to thrive with cystic fibrosis. The hope is that, with continued support from the Foundation, the Center will be able to create a sustainable model for these vital services.

Morristown Medical Center/Atlantic Health System

Gunnar H. Esiason Cystic Fibrosis Center

Due to a grant from BEF, this center – which is a treatment facility for adults living with CF – has been able to increase its clinical capabilities and launch new, innovative clinical research and has enhanced and added fitness and nutritional programs to improve quality of life for its CF patients.

Emory + Children's Cystic Fibrosis Center of Excellence

BEF supports the Journey to Independence transition program, which assists the Adult Care Transition Coordinator, Mental Health Coordinator, and the development and implementation of comprehensive educational programming.

Lung Transplant Project

BEF presented the Lung Transplant Project Foundation (LTPF) with a grant to help them fulfill their mission to improve the well-being of patients with cystic fibrosis by studying the development of immune tolerance in lung transplant recipients.

In 2018, they partnered with the Columbia University Lung Transplant Program to support a patient-centric support program that will enhance the quality of life for patients and their families; it includes: an ongoing patient support group for post-transplant patients, mentorship for post-transplant patients, and a patient assistance program.

Northwell/Cohen Children’s CF Medical Center

BEF continued its investment in Cohen Children’s Medical Center as it undertakes the next step in advancing world-class pediatric CF care on Long Island by piloting new programs in gastroenterology and nutrition that will enable them to provide more comprehensive clinical care while advancing new avenues in research and quality improvement.

CFRI

BEF is a major sponsor for the CFRI National CF Family Education Conference held annually in San Francisco.

CF Roundtable

BEF is a major sponsor of the CF Roundtable, an edicational and empowering newsletters for the CF community, enabling them to release and expand the CF-related publication and cover any related website costs.

Monmouth Medical Center - RWJ Barnabas Health

With a grant from BEF, this adult CF center will enhance the clinical care equipment and facility to include comprehensive evaluation and treatment services via clinical care upgrades such as a Lung Clearance Index Machine.

Newark Beth Israel Medical Center - RWJ Barnabas Health

With the support of BEF, this Center has employed a full-time transition care coordinator whose role is to connect CF patients and families at CF centers throughout New Jersey with NBIMC’s Lung Transplant Program and assist them through the assessment process and transition them early for transplant.

2017

NewYork-Presbyterian/Columbia University Medical Center

Gunnar Esiason Adult Cystic Fibrosis & Lung Program
Established in 2009 with a grant from BEF, this program has become the premier site for adult CF care and research in the NYC metropolitan area.

Boomer Esiason Foundation Organ Care and Recovery Unit
BEF, dedicated to the health and recovery of CF patients who need transplants, sponsored this unit at CUMC to help further research in transplants, organ care, and organ recovery.

Cincinnati Children’s Hospital Medical Center

Gunnar H. Esiason Lung and Cystic Fibrosis Center

Initially and continually funded by BEF, this center’s mission is to prepare health professionals for the new era of cystic fibrosis – an era when CF patients will survive long into adulthood and face new challenges.

Morristown Medical Center

Gunnar H. Esiason Cystic Fibrosis Center

Due to a grant from BEF, this center – which is a treatment facility for adults living with CF – has been able to increase its clinical capabilities and launch new, innovative clinical research.

The Lung Transplant Project Foundation

BEF presented the Lung Transplant Project Foundation (LTPF) with a grant to help them fulfill their mission to improve the well being of patients with cystic fibrosis by studying the development of immune tolerance in lung transplant recipients.

Northwell/Cohen Children’s CF Medical Center

BEF continued its investment in Cohen Children’s Medical Center as it undertakes the next step in advancing world-class pediatric CF care on Long Island by piloting new programs in gastroenterology and nutrition that will enable them to provide more comprehensive clinical care while advancing new avenues in research and quality improvement.

CFRI

BEF is a major sponsor for the CFRI National CF Family Education Conference held annually in San Francisco.

CF Roundtable

BEF is a major sponsor of the CF Roundtable, enabling them to release a CF-related publication and cover any related website costs.

Monmouth Medical Center

Due to a grant from BEF This adult CF center will enhance the clinical care equipment and facility to include comprehensive evaluation and treatment services via clinical care upgrades such as a Lung Clearance Index Machine.

2016

Columbia University Medical Center

Gunnar Esiason Adult Cystic Fibrosis & Lung Program
Established in 2009 with a grant from BEF, this program has become the premier site for adult CF care and research in the NYC metropolitan area.

Boomer Esiason Foundation Organ Care and Recovery Unit
BEF, dedicated to the health and recovery of CF patients who need transplants, sponsored this unit at CUMC to help further research in transplants, organ care, and organ recovery.

Cincinnati Children’s Hospital Medical Center

Gunnar H. Esiason Lung and Cystic Fibrosis Center

Initially and continually funded by BEF, this center’s mission is to prepare health professionals for the new era of cystic fibrosis – an era when CF patients will survive long into adulthood and face new challenges.

Morristown Medical Center

Gunnar H. Esiason Cystic Fibrosis Center

Due to a grant from BEF, this center – which is a treatment facility for adults living with CF – has been able to increase its clinical capabilities and launch new, innovative clinical research.