Cystic Fibrosis Centers and Programs

From day one, the Boomer Esiason Foundation has supported researchers, cystic fibrosis centers’ staff, and all caregivers; BEF pledged to assist those teams financially so that they have access to the latest technology and research in order to best serve the cystic fibrosis community.

2019

NewYork-Presbyterian/Columbia University Medical Center

Immune Tolerance Program
New in 2019

Gunnar Esiason Adult Cystic Fibrosis & Lung Program
Established in 2009 with a grant from BEF, this program has become the premier site for adult CF care and research in the NYC metropolitan area. In 2018, BEF also supported a Nurse Practitioner to assist the increased research and drug studies for people with CF and the growth of the center to more than 260 patients.

Boomer Esiason Foundation Organ Care and Recovery Unit
BEF, dedicated to the health and recovery of CF patients who need transplants, sponsored this unit at CUMC to help further research in transplants, organ care, and organ recovery.

Northwell/Cohen Children’s CF Medical Center

BEF continued its investment in Cohen Children’s Medical Center as it undertakes the next step in advancing world-class pediatric CF care on Long Island by piloting new programs in gastroenterology and nutrition that will enable them to provide more comprehensive clinical care while advancing new avenues in research and quality improvement.

Drexel

New Drexel Program

CF Lifestyle Foundation

New 2019

Rock CF

New 2019

CFRI

BEF is a major sponsor for the CFRI National CF Family Education Conference held annually in San Francisco.

CF Roundtable

BEF is a major sponsor of the CF Roundtable, an edicational and empowering newsletters for the CF community, enabling them to release and expand the CF-related publication and cover any related website costs.

CF Yoga

New 2019

Other Programs in 2019

Take-a-Breathe Foundation 

 

Laps to Breathe – Harrill Racing

2018

NewYork-Presbyterian/Columbia University Medical Center

Gunnar Esiason Adult Cystic Fibrosis & Lung Program

Established in 2009 with a grant from BEF, this program has become the premier site for adult CF care and research in the NYC metropolitan area. In 2018, BEF also supported a Nurse Practitioner to assist the increased research and drug studies for people with CF and the growth of the center to more than 260 patients.

Boomer Esiason Foundation Organ Care and Recovery Unit
BEF, dedicated to the health and recovery of CF patients who need transplants, sponsored this unit at CUMC to help further research in transplants, organ care, and organ recovery.

Cincinnati Children's CF Center

With BEF funding, the CF Center at Cincinnati Children’s has developed two programs – BETTER-CF (Behaviors, Emotions, and Thoughts to Enhance Resilience in cystic fibrosis) and Ensuring School and Professional Success – that are aimed at preparing patients and their families to thrive with cystic fibrosis. The hope is that, with continued support from the Foundation, the Center will be able to create a sustainable model for these vital services.

Morristown Medical Center/Atlantic Health System

Gunnar H. Esiason Cystic Fibrosis Center

Due to a grant from BEF, this center – which is a treatment facility for adults living with CF – has been able to increase its clinical capabilities and launch new, innovative clinical research and has enhanced and added fitness and nutritional programs to improve quality of life for its CF patients.

Emory + Children's Cystic Fibrosis Center of Excellence

BEF supports the Journey to Independence transition program, which assists the Adult Care Transition Coordinator, Mental Health Coordinator, and the development and implementation of comprehensive educational programming.

Lung Transplant Project

BEF presented the Lung Transplant Project Foundation (LTPF) with a grant to help them fulfill their mission to improve the well-being of patients with cystic fibrosis by studying the development of immune tolerance in lung transplant recipients.

In 2018, they partnered with the Columbia University Lung Transplant Program to support a patient-centric support program that will enhance the quality of life for patients and their families; it includes: an ongoing patient support group for post-transplant patients, mentorship for post-transplant patients, and a patient assistance program.

Northwell/Cohen Children’s CF Medical Center

BEF continued its investment in Cohen Children’s Medical Center as it undertakes the next step in advancing world-class pediatric CF care on Long Island by piloting new programs in gastroenterology and nutrition that will enable them to provide more comprehensive clinical care while advancing new avenues in research and quality improvement.

CFRI

BEF is a major sponsor for the CFRI National CF Family Education Conference held annually in San Francisco.

CF Roundtable

BEF is a major sponsor of the CF Roundtable, an edicational and empowering newsletters for the CF community, enabling them to release and expand the CF-related publication and cover any related website costs.

Monmouth Medical Center - RWJ Barnabas Health

With a grant from BEF, this adult CF center will enhance the clinical care equipment and facility to include comprehensive evaluation and treatment services via clinical care upgrades such as a Lung Clearance Index Machine.

Newark Beth Israel Medical Center - RWJ Barnabas Health

With the support of BEF, this Center has employed a full-time transition care coordinator whose role is to connect CF patients and families at CF centers throughout New Jersey with NBIMC’s Lung Transplant Program and assist them through the assessment process and transition them early for transplant.

2017

NewYork-Presbyterian/Columbia University Medical Center

Gunnar Esiason Adult Cystic Fibrosis & Lung Program
Established in 2009 with a grant from BEF, this program has become the premier site for adult CF care and research in the NYC metropolitan area.

Boomer Esiason Foundation Organ Care and Recovery Unit
BEF, dedicated to the health and recovery of CF patients who need transplants, sponsored this unit at CUMC to help further research in transplants, organ care, and organ recovery.

Cincinnati Children’s Hospital Medical Center

Gunnar H. Esiason Lung and Cystic Fibrosis Center

Initially and continually funded by BEF, this center’s mission is to prepare health professionals for the new era of cystic fibrosis – an era when CF patients will survive long into adulthood and face new challenges.

Morristown Medical Center

Gunnar H. Esiason Cystic Fibrosis Center

Due to a grant from BEF, this center – which is a treatment facility for adults living with CF – has been able to increase its clinical capabilities and launch new, innovative clinical research.

The Lung Transplant Project Foundation

BEF presented the Lung Transplant Project Foundation (LTPF) with a grant to help them fulfill their mission to improve the well being of patients with cystic fibrosis by studying the development of immune tolerance in lung transplant recipients.

Northwell/Cohen Children’s CF Medical Center

BEF continued its investment in Cohen Children’s Medical Center as it undertakes the next step in advancing world-class pediatric CF care on Long Island by piloting new programs in gastroenterology and nutrition that will enable them to provide more comprehensive clinical care while advancing new avenues in research and quality improvement.

CFRI

BEF is a major sponsor for the CFRI National CF Family Education Conference held annually in San Francisco.

CF Roundtable

BEF is a major sponsor of the CF Roundtable, enabling them to release a CF-related publication and cover any related website costs.

Monmouth Medical Center

Due to a grant from BEF This adult CF center will enhance the clinical care equipment and facility to include comprehensive evaluation and treatment services via clinical care upgrades such as a Lung Clearance Index Machine.

2016

Columbia University Medical Center

Gunnar Esiason Adult Cystic Fibrosis & Lung Program
Established in 2009 with a grant from BEF, this program has become the premier site for adult CF care and research in the NYC metropolitan area.

Boomer Esiason Foundation Organ Care and Recovery Unit
BEF, dedicated to the health and recovery of CF patients who need transplants, sponsored this unit at CUMC to help further research in transplants, organ care, and organ recovery.

Cincinnati Children’s Hospital Medical Center

Gunnar H. Esiason Lung and Cystic Fibrosis Center

Initially and continually funded by BEF, this center’s mission is to prepare health professionals for the new era of cystic fibrosis – an era when CF patients will survive long into adulthood and face new challenges.

Morristown Medical Center

Gunnar H. Esiason Cystic Fibrosis Center

Due to a grant from BEF, this center – which is a treatment facility for adults living with CF – has been able to increase its clinical capabilities and launch new, innovative clinical research.