Call to Action
Help us help those with Cystic Fibrosis. Here are just a few ways that you can step up in the fight to find a cure.
Upcoming Changes to Healthcare
The final version of the 2025 budget reconciliation bill passed on July 4, 2025 and will enact sweeping changes to healthcare in the United States over the next several years, including cuts to the Medicaid program, which 36% of people and 52% of children younger than 10 living with CF are covered by. It’s estimated that over 10 million people may lose insurance coverage because of the changes in this bill.
While the federal legislation passed, you can still advocate to your state lawmakers about why Medicaid matters to you!
PASTEUR Act
People with CF often need to be treated with antibiotics regularly from a young age to fight off infections in the thick, sticky mucus in their lungs, so they are at an elevated risk of their infections becoming more and more resistant to drugs over time. The PASTEUR Act is a proposed bill that supports investment in new treatments for antimicrobial resistant infections.
Contact your legislators to encourage their support of the PASTEUR Act!
HELP Copays Act
Copay accumulators and maximizers used by insurers and pharmacy benefit managers (PBMs) siphon copay assistance away from patients by not counting third-party assistance towards cost-sharing requirements. The HELP Copays Act (S.864) was reintroduced in the Senate in March 2025 and would ban copay accumulators and maximizers. The bill would allow all third-party copay assistance to apply towards any insurance cost-sharing requirements and close a loophole that allows insurers and PBMS to set annual out-of-pocket maximums to the maximum amount of copay assistance.
Contact your Senators to encourage their support of the HELP Copays Act!
Donate Life
You can save lives by becoming an organ donor today! In 2023, 23,286 donors led to 46,630 transplants. As a donor, you have the power to save up to 8 lives through organ donation and heal up to 75 people through tissue donation.
Donate Life America has resources to register and to learn more about organ donation.
Share Your Story
We love to see what you do and how you share your passion for BEF and advocating for cystic fibrosis. Share your story with us below.
And if you share your story on social media, be sure to tag us @boomeresiasonfoundation
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