Cystic Fibrosis Podcast 60: Linda Hood, Mother of Twin Boys with CF – Talks about Transitioning

Linda Hood from Cincinnati, Ohio talks about growing up with twin boys with CF – Keith and Kyle – and transitioning to an adult CF center. Linda’s boys were born 4 weeks early and found out they had cystic fibrosis at 6 months of age.

  • “Finding out my twin boys had cystic fibrosis was the most devastating thing in my life…? states Linda
  • Linda states; “the doctors told a horrifying story and said my boys would not live to 18 years of age?
  • Linda and her family were proactive and started fundraising for a cure.
  • Being a caregiver is scary due to concerns/fear of germs at school.
  • Linda discusses making the transition from pediatric to adult CF center and the resources available to adults.
  • Linda gets her support from her husband – “My husband is my strength and gets me through the tough times…?
  • “Stay hopeful… do what the doctors tell you to do… do not take shortcuts,? states Linda.
  • Linda’s advice: “Let your son or daughter be boys or girls and ENJOY LIFE!?
  • Keith and Kyle are in college today and LIVING BREATHING SUCCEEDING.