Category: Boomer Esiason Foundation

  • Announcing the 2019 Sacks for CF Scholarship Recipients!

    The Boomer Esiason Foundation has awarded prestigious “Sacks for CF” academic scholarships to 30 outstanding students with cystic fibrosis.
    Through the NFL season, longtime BEF partner Abbvie makes a donation to the BEF Sacks for CF scholarship program for every quarterback sack recorded during NFL Monday Night Football games. Then, these funds are awarded to college students with cystic fibrosis based on academic achievement and adherence to daily CF therapy.

    The Sacks for CF scholarship winners for this year are: 

    Kaitlyn   Rose                   Stanford University
    April   Zoppa                   Belmont University
    Margaret   Murphy                  Auburn University
    Alexander   Remington                  Gettysburg College
    Samuel   Neff                   Dartmouth College
    Samantha   Johnson                   University of California, Los Angeles
    Lise Courtney   D’Amico                   The University of Chicago
    Emma   Bush                   Michigan State University
    Nicholas   Kendrick                   University of South Carolina
    Sydney   Brewer                   Pennsylvania State University
    Angelica   Rock                   University of California, Los Angeles
    Francesca   Weis                   Louisiana Tech University
    Lexi   Cottrell                   North Carolina State University
    Madeline   Poranski                   University of Minnesota – Twin Cities
    Jessica   Jilovec                   Baylor University
    Michael   Miccioli                   Harvard University
    Emily   Schutz                   Florida State University
    Taylor   Brown                   Saint Norbert College
    Kevin   Reis                   Missouri University of Science and Technology
    Emily   Hethcox                   Auburn University
    Elizabeth   Sullivan                   The University of Texas San Antonio
    Ambrose   Bean                   Ave Maria University
    Benjamin   James                   Mount Vernon Nazarene University
    Tovah   Duffaut                   Colby College
    Maclin   Rung                   Duke University
    Cameron   Curl                   Middlebury College
    David   Carpenter                   Franklin College
    Ashley   Sanchez                   Miami Dade College
    Lara   Marsh                   University of Nebraska – Omaha

     

  • Lea Faraone Was an Amazing Person

    Lea slid into my DMs about two and a half years ago asking if I’d be willing to help her with a video she was making for Tiffany Rich’s transplant recovery. Lea’s best friend was in a dire situation and all she wanted to do was help. Little did I know that would be the start of an amazing friendship. That was the kind of person she was. She dedicated her life to service so that others may live.

    My heart is broken today after learning of Lea’s passing. She was a good person, in fact one of the best.

    Continue reading Gunnar’s blog about Lea here.

  • Congratulations to our 2017-2018 Sacks for CF Scholarship Recipients!

    The Boomer Esiason Foundation has awarded prestigious “Sacks for CF” academic scholarships to 30 outstanding students with cystic fibrosis.

    Through the NFL season, longtime BEF partner Abbvie makes a donation to the BEF Sacks for CF scholarship program for every quarterback sack recorded during NFL Monday Night Football games. Then, during the Super Bowl, these funds are awarded to college students with cystic fibrosis based on academic achievement and adherence to daily CF therapy.

    The Sacks for CF scholarship winners for 2017-2018 are:

     

    Allison Brann                    Boston College

    Taylor Brown                    Saint Norbert College

    Caroline Castonguay       Mount Holyoke College

    Matthew Fielder               University of Colorado

    Peyton Laffoon                 Bakersfield College

    Anna  Rogers                   Georgetown University

    Tyler Roye                        Texas A & M

    Logan Twohey                  University of Louisville

    Jo Lauren Weaver            University of Florida

    Juliann Yungkans              Arizona State University

                           

    Emma Bush                       Michigan State University

    Olivia Owens                     North Carolina State University

    Michael Miccioli                 Harvard University

    Kathleen Mullins                Northeastern University

    Bryce Cornell                     University of Notre Dame

    Elizabeth High                   Mount Holyoke College

    Camille Niccum                  Eastern Illinois University

    Anna  Campbell                 Tulane University

    Elizabeth Sullivan               Saint Edward’s University

    Rebecca Cedillo                 The University of Texas at Dallas

                           

    Andrea Rider                      Iowa State University

    Eric Anderson                     Stanford University

    Regan Stigall                      Baylor University

    Riley Demanche                 Northeastern University

    Kimber Blackburn               Appalachian state university

    Carly Lickliter                      Ball State University

    Jacqueline Johnson            St. Catherine University

    Kevin Reis                           Missouri University of Science and Technology

    Mackenzie Guilford              The University of Findlay

    Shawn King                          Arkansas State University – Newport

     

    For more information about the Sacks for CF program, please visit www.SacksForCF.com.

  • Vertex Announces Positive Phase 1 & Phase 2 Data from Three Different Triple Combination Regimens in People with Cystic Fibrosis Who Have One F508del Mutation and One Minimal Function Mutation

    SOURCE 

     

    Vertex Announces Positive Phase 1 & Phase 2 Data from Three Different Triple Combination Regimens in People with Cystic Fibrosis Who Have One F508del Mutation and One Minimal Function Mutation (F508del/Min)

    -Phase 2 data showed mean absolute improvements in ppFEV1 of 9.7 and 12.0 percentage points for VX-152 and VX-440, respectively, in triple combination with tezacaftor and ivacaftor in F508del/Min patients; Initial data from Phase 1 study showed mean absolute improvement in ppFEV1 of 9.6 percentage points with VX-659 triple combination in F508del/Min patients-

    -First data to demonstrate the potential to treat the underlying cause of CF in people with F508del/Min mutations, a severe and difficult-to-treat type of the disease-

    -Initial Phase 2 data also showed mean absolute improvements in ppFEV1 of 7.3 and 9.5 percentage points when VX-152 or VX-440 was added in people with two copies of the F508del mutation (F508del/F508del), who were already receiving tezacaftor and ivacaftor-

    -All 3 triple combination regimens were generally well tolerated across the studies-

    BOSTON–(BUSINESS WIRE)– Vertex Pharmaceuticals Incorporated (Nasdaq: VRTX) today announced positive data from Phase 1 and Phase 2 studies of three different triple combination regimens in people with cystic fibrosis (CF) who have one F508del mutation and one minimal function mutation (F508del/Min). These are the first data to demonstrate the potential to treat the underlying cause of CF in these patients, who have a severe and difficult-to-treat type of the disease. Data from the Phase 2 studies in these patients showed mean absolute improvements in percent predicted forced expiratory volume in one second (ppFEV1) of 9.7 and 12.0 percentage points from baseline for the triple combination regimens with VX-152 (200mg q12h) or VX-440 (600mg q12h), respectively. Initial data from a Phase 1 study showed a mean absolute improvement in ppFEV1 of 9.6 percentage points from baseline for the triple combination regimen of VX-659, tezacaftor and ivacaftor in people with one F508del mutation and one minimal function mutation. The company also announced today initial data showing improvements in mean absolute ppFEV1 of 7.3 and 9.5 percentage points when VX-152 or VX-440 was added in people with two copies of the F508del mutation, who were already receiving tezacaftor and ivacaftor. Vertex will host a conference call for investors today, July 18, 2017 at 5:00 p.m. EDT, to discuss these results.

    The triple combination regimens were generally well tolerated across all three studies, and the majority of adverse events were mild to moderate in severity. Across the studies, the discontinuation rate due to adverse events was low.

    “These safety and efficacy data are clear and compelling, indicating significant potential benefit for people with CF from each of these three different triple combination regimens,” said Jeffrey Chodakewitz, M.D., Executive Vice President and Chief Medical Officer at Vertex. “We will be collecting and evaluating additional data from these and other studies and will make a decision on which regimen(s) to take forward into pivotal program(s), which we expect to begin in the first half of 2018.”

    Vertex has established a Steering Committee of global CF experts and clinical trial investigators to support the design, conduct and execution of the triple combination pivotal study program. This committee is co-chaired by Steven M. Rowe, M.D., M.S.P.H., Professor of Medicine, Pediatrics, and Cell, Developmental and Integrative Biology, Director of the Gregory Fleming James Cystic Fibrosis Research Center, Nancy and Eugene Gwaltney Endowed Chair for Medical Research, University of Alabama at Birmingham, and Jennifer Taylor-Cousar, M.D., Associate Professor, Departments of Medicine and Pediatrics, Pulmonary Divisions, Medical Director of Clinical Research Services and Co-Director and Director of the CF Therapeutics Development Network, Adult CF Program, National Jewish Health, Colorado.

    “Patients with minimal function mutations have been waiting for a medicine to treat the underlying cause of their disease, which makes these data showing pronounced improvements in lung function particularly important,” said Dr. Rowe. “It’s also encouraging to see that the addition of a next-generation corrector may lead to substantial additional benefits for patients with two copies of the F508del mutation, who were already receiving tezacaftor and ivacaftor.”

     

    FINISH READING THE ORIGINAL PRESS RELEASE HERE

  • Remembering Friend of BEF and CF Advocate, Frank DeFord

    Over the weekend, the cystic fibrosis and sports writing communities lost an important voice with the passing of Frank DeFord. This morning, Boomer reflected on his nearly 30 year friendship with Frank with the CBS Sports Minute.

    In the below segment, you can watch Frank Deford sit down with Boomer Esiason to discuss fighting cystic fibrosis, the Boomer Esiason Foundation, and their bond as CF Dads. 

    Boomer Esiason and Frank DeFord_HBO Real Sports_Clip from Boomer Esiason Foundation on Vimeo.

     

    SOURCE: NPR

    Through nearly four decades, at least five presidential administrations and seemingly countless Super Bowls and World Series, NPR listeners could depend on at least one thing in the ever-unpredictable world of athletics: Frank Deford. A mainstay on Morning Edition, the Hall of Fame sportswriter was public radio’s scholar of sports for some 37 years before hanging up his cleats earlier this year.

    Deford died Sunday at the age of 78 at his home in Key West, Fla., his wife confirmed to NPR. He leaves behind an astonishing 1,656 commentaries for NPR.

    “We are saddened to hear that Frank Deford has passed away,” NPR President and CEO Jarl Mohn said in a statement Monday. “Since 1980, Frank voiced sports commentary for NPR, leaving us 1,656 of his signature insights into the world of sports and the human stories behind athletic triumphs. He was a beloved colleague and a signature voice of public radio.”

    Upon his retirement earlier this year, Deford himself expressed gratitude for this longstanding relationship with listeners.

    “The wonderful thing about delivering sports commentary on NPR was that because it has such a broad audience, I was able to reach people who otherwise had little or no interest in sport — especially as an important part of our human culture,” Deford said at the time.

    “Nothing made me happier than to hear from literally hundreds of listeners who would tell me how much the commentaries revealed about a subject they otherwise had never cared much for. I’ll forever be grateful to NPR that they gave me such extraordinary freedom. … It was 37 years of a fond relationship.”

    As NPR’s Tom Goldman notes, that relationship didn’t exactly begin as a long-term commitment. In fact, at the time he was recruited by a Morning Edition that was still in its infancy, Deford hadn’t expected to contribute his commentaries for more than a few months.

    After all, back in 1979, Deford was already one of the star writers at Sports Illustrated, having already been with the magazine for about a decade and a half. He was an accomplished sportswriter, producing pieces that would ultimately earn him the honor of U.S. Sportswriter of the year six times, according to SI. He had nothing to prove.

    Still, he embraced the opportunity.

    “I am something of a ham,” he told Tom earlier this month. “Yeah, I’d always been a writer. But in high school I acted in plays. So it wasn’t as if you had to drag the words out of my vocal chords.”

    And so what began as a brief gig in 1980 became a deep and lasting relationship with NPR’s listeners. Each week, he would voice opinions both creative and controversial, references to Shakespeare and scathing takedowns — not just of commissioners but even occasionally entire sports, as some ice hockey and soccer fans may still remind you.

    His body of work on NPR — as well as in Sports Illustrated, HBO’s Real Sports with Bryant Gumbel and 20 books of his own — earned him not just listeners’ loyalty but his profession’s and the nation’s highest honors, too: an induction into the National Sports Media Association Hall of Fame in 1998, and a National Humanities Medal in 2013.

    He was the first sportswriter to win that medal.

    “A dedicated writer and storyteller, Mr. Deford has offered a consistent, compelling voice in print and on radio, reaching beyond scores and statistics to reveal the humanity woven into the games we love,” President Barack Obama said of Deford in a statement at the time.

    All the while, Deford remained an evangelist for the games he loved — and for the crucial role they continue to play in our lives.

    “This is part of your life — it’s the second tier,” he told Tom. “The first tier is eating, drinking and procreation. The second tier is religion, the spirit, music, art and the physical. Sports. It deserves to have as much attention paid to it, seriously.”

  • Managing Your Cystic Fibrosis Treatment Plan for a Fuller Life via Web MD

    Web MD Education and the Boomer Esiason Foundation, through a strategic collaboration, developed an activity for people with cystic fibrosis (CF) and their care partners, as well as others who want to learn why and how to follow a CF treatment plan more consistently. The goals are to learn ways to regularly stick with your treatment plan and to get inspired, confident, and committed to being physically active.

    VIEW THE ACTIVITY HERE

     

    Excerpt from the WebMD Education activity from Michelle Pelini on Vimeo.

    This footage is an excerpt from the WebMD Education activity “Managing Your Cystic Fibrosis Treatment Plan for a Fuller Life” featuring video interviews with Dr. Natalie West and Jerry Cahill, CF Ambassador for Education & Grants at BEF. 

    Supported by an independent educational grant from Vertex Pharmaceuticals Inc. and Novartis Pharmaceuticals Corp. 

  • 2016-2017 Sacks for CF Scholarship Winners

    The Boomer Esiason Foundation has awarded prestigious “Sacks for CF” academic scholarships to 30 outstanding students with cystic fibrosis.

    Through the NFL season, longtime BEF partner Abbvie makes a donation to the BEF Sacks for CF scholarship program for every quarterback sack recorded during NFL Monday Night Football games. Then, during the Super Bowl, these funds are awarded to college students with cystic fibrosis based on academic achievement and adherence to daily CF therapy.

    The Sacks for CF scholarship winners for 2016-2017 are:

    Jacob Greene | Stanford University
    Benjamin James | Virginia Commonwealth University
    Julia Wright | Yale University
    Emily Hethcox | Auburn University
    Aleeya Young | Xavier University
    Joy Arnold | University of California – Berkeley
    Rosie Garvey | Clark University
    Thomas Brophy | University of Maryland
    Jared Cowan | Wabash University
    Luke McFadden | University of Arkansas

    Ambrose Bean | Ave Maria University
    Laura Cheevers | Providence College
    Sara Desrocher | College of St. Scholastica
    Alexandra Faircloth | Charleston Southern University
    Kevin Reis Missouri | University of Science and Technology
    Theresa Webber | UNC Chapel Hill
    Ryan Elitz | DeSales
    Mitchell Wekwert | Central Michigan University
    Beatrice Miner | University of Central Florida
    Charlie Kilgore | Brown

    Jake Reynolds | Springfield College
    Allison Johnson | Miami University
    Alexandria Naughton | University of South Alabama
    Benjamin Dodds | University of Pittsburgh
    Callie Deandra | Montreat College
    Corey Sarkis | Northeastern University
    Caroline Weber | South Dakota State University
    Brett Hatfield | University of Nebraska – Omaha
    Kelsey Wessels | Northern Kentucky University
    Mohammed Joudeh | Miami Dade College

    “Our ultimate goal and hope is that one day, a cure for cystic fibrosis is found. So while we wait – the Foundation has found ways to support the CF community every day in the here and now,” said Boomer Esiason. “Abbvie has been a proponent of that goal from day one and has changed the lives and futures of countless students who are battling CF.”

    For more information about the Sacks for CF program, please visit www.SacksForCF.com.

  • When you give, we give back!

    When you give, we give back!

    DONATE TODAY

    During the month of December 2016, the Boomer Esiason Foundation is giving back to our donors. Make a donation at one of the following levels, and we will send you a few special gifts! 

    $100
    5 Team Boomer bands, 5 YCF bands, YCF Children’s book, Tru Heroes drawstring bag, Team Boomer towel

    $250
    5 Team Boomer bands, 5 YCF bands, YCF Children’s book, Tru Heroes drawstring bag, Team Boomer towel, Boomer bobble head, Jump the Fear jump rope

    $500
    5 Team Boomer bands, 5 YCF bands, YCF Children’s book, Tru Heroes drawstring bag, Team Boomer towel, Boomer bobble head, Jump the Fear jump rope, Boomer Esiason autographed football

    $750
    5 Team Boomer bands, 5 YCF bands, YCF Children’s book, Tru Heroes drawstring bag, Team Boomer towel, Boomer bobble head, Jump the Fear jump rope, Boomer Esiason autographed football, Boomer Esiason autographed Maryland jersey

    $1000
    5 Team Boomer bands, 5 YCF bands, YCF Children’s book, Tru Heroes drawstring bag, Team Boomer towel, Boomer bobble head, Jump the Fear jump rope, Boomer Esiason autographed football, Autographed Boomer Esiason Bengal’s jersey, Personalized thank you from Boomer Esiason

  • BEF to Participate in 2016 Cantor Fitzgerald Charity Day

    Boomer Esiason Foundation to Participate in 2016 Cantor Fitzgerald Charity Day

    Event to Honor the 15th Anniversary of the 9/11 World Trade Center Attacks

    The Boomer Esiason Foundation (BEF), a nonprofit organization dedicated to empowering the cystic fibrosis (CF) community through fundraising for research, programs, scholarships, transplant grants, and educational resources, today announced its participation in the 2016 Cantor Fitzgerald Charity Day. BEF and Cantor Fitzgerald have a long-standing history, dating back to 1995 when the foundation moved into Cantor Fitzgerald offices in the North Tower of the World Trade Center. The foundation has participated in numerous consecutive Charity Days, which were started to honor the 658 Cantor Fitzgerald friends and colleagues and 61 Eurobrokers employees lost in the 9/11 World Trade Center attacks. Among those lost was Tim O’Brien, Boomer Esiason’s close friend and an original member of BEF’s Board of Directors.

    Every year around the anniversary of the terrorist attacks, Cantor Fitzgerald and BGC Partners honor those who perished by distributing 100% of global revenues on Charity Day to The Cantor Fitzgerald Relief Fund (”Cantor Relief”). It is the mission of Cantor Relief to provide aid to victims of terrorism, natural disasters and other emergencies, as well as to a wide variety of other charitable organizations providing assistance to those in need. For this annual day, The Cantor Fitzgerald Relief Fund invites celebrity guests from the entertainment and sports industries to work with licensed brokers and their clients to raise money and awareness for a variety of causes.   

    “Cantor Relief’s Charity Day is an event that we hold very dear to our hearts at BEF, and on the 15th anniversary of the 9/11 World Trade Center attacks, this event gives us an opportunity to reflect. We lost many friends that day, so while Charity Day is bittersweet for me and all of us at the foundation, it also serves a reminder that positivity and generosity can grow out of tragic circumstances,” said Boomer Esiason, founder of BEF.  

    To date, The Cantor Fitzgerald Relief Fund has raised and distributed over $292 million, with Charity Day raising approximately $125 million globally.

     

    About the Boomer Esiason Foundation 
    Founded in 1993 by Boomer Esiason and his wife, Cheryl, after their son was diagnosed with cystic fibrosis, the Boomer Esiason Foundation (BEF) works to ensure that people living with CF and their loved ones are encouraged, empowered and educated to take an active role in treating the disease. BEF aids the CF community through fundraising, programs, scholarships, transplant grants and educational resources. The passionate work of a committed core of volunteers alongside leaders in the medical and business communities allows BEF to raise awareness, money and quality of life for those affected by this deadly disease.
    For more information, visit to www.esiason.org.

     

    About The Cantor Fitzgerald Relief Fund
    Founded in the wake of the September 11, 2001 terrorist attacks on the World Trade Center, The Cantor Fitzgerald Relief Fund has raised and distributed approximately $180 million to over 800 families and 932 children of the victims of that tragedy. Since 9/11, The Cantor Fitzgerald Relief Fund expanded its scope to not only include victims of terrorism, but to also assist victims of natural disasters and emergencies, including victims of Superstorm Sandy, the tornado in Moore, Oklahoma, Hurricane Katrina, the tsunami of 2004 and the Haiti earthquake.
    The Cantor Fitzgerald Relief Fund also works to assist wounded members of the U.S. military and a wide variety of other charitable organizations. Since its inception, The Cantor Fitzgerald Relief Fund has distributed over $292 million.

    The Cantor Fitzgerald Relief Fund is unique in that it often provides direct assistance directly to the people affected by these tragedies without intermediary or secondary organizational involvement. Cantor Fitzgerald Chairman and CEO Howard Lutnick and the partners of Cantor Fitzgerald underwrite all the expenses of the Fund so that 100% of every dollar raised goes directly to those in need.

    For more information, please visit www.cantorrelief.org.

     

    About Cantor Fitzgerald, L.P.
    Cantor Fitzgerald, L.P. is a financial services firm with operating units that are involved in a variety of market-based business initiatives. From its position as a leading financial intermediary in both the equity and fixed income markets, Cantor has expanded the scope of its business to include portfolio trading, investment banking, financial spread betting, market advisory, energy brokerage, CO2 emissions trading and electronic trading technology. Cantor brings its experience and expertise in the financial markets and its legacy of innovation in technology to benefit institutional investors and traders around the world. Whether creating new products and services or enabling its clients to trade more efficiently and effectively through cutting edge technological solutions, Cantor is reinventing markets every day.

  • CFurther: Empowering Self Care From a Young Age

    Watch the CFurther: Empowering Self Care From a Young Age webcast, proudly brought to you by the Boomer Esiason Foundation and Novartis Pharmaceuticals Corporation. This webcast offers practical advice to caregivers on finding the right balance between shifting the responsibilities of managing cystic fibrosis (CF) treatments to their children while still providing needed support.

     

     

     

    Moderated by Kat Quinn, BSW, MS, a mother of a 9-year-old girl with CF, and founder of the Blooming Rose Foundation, the webcast features an expert panel that includes:

    • Tess Dunn, 20-year-old CF patient, singer-songwriter and CF advocate
    • Siri Vaeth Dunn, MSW,  mother of Tess, social worker and program and outreach manager at Cystic Fibrosis Research, Inc.
    • Dr. Susanna McColley, pediatric pulmonologist in Chicago, Illinois, professor and Associate Director of Cystic Fibrosis Center Division of Pulmonary Medicine Ann & Robert H. Lurie Children’s Hospital of Chicago

    Download the presentation slides to follow along with the webcast discussion.

    Download the following Tip Sheets based on the panelists’ advice: