BEF, Author at The Boomer Esiason Foundation

May 28, 2026

by Bryce Murray Insurance benefit design may sound like a boring technical phrase, but it is actually one of the most important parts of health care access. A person can have insurance and still not be able to afford their care, depending on how their insurance...

The Insurance Loopholes: Maximizers and Accumulators

by BEF

Fellowship Blog

May 19, 2026

by Aine Stevens Aine Stevens is a 20-year old engineering student at the University of Connecticut and is a patient with CF. She is perusing Civil & Environmental Engineering and loves advocating for the CF community in her spare time. When I was in the middle of...

Battling the Barriers: Identifying what Prevents People with Cystic Fibrosis from Participating in Clinical Trials & Research Studies

by BEF

Fellowship Blog

May 13, 2026

by Sydney Anderson Participation of Cystic Fibrosis (CF) patients in clinical trials and research studies is crucial for innovation and progress towards a cure, but there are many barriers that can prevent or disincentivize participation. I spoke about this issue with Karoline Servier, who is a...

Teegan Sibble Refuses To Use Cystic Fibrosis As An Excuse

by BEF

BEF Athletes News

January 14, 2026

By Kyle Klingman, FLOWRESTLING “East Stroudsburg's Teegan Sibble has cystic fibrosis, but it won't define her, and it won't stop her from achieving high-level success.” Watch Full Interview Here ...

A Clinical Study for People with Cystic Fibrosis (CF) Who Have Specific Mutations in the CFTR Gene, Which Are the Cause of CF

by BEF

Clinical Trials

November 19, 2025

Sponsored by ReCode Therapeutics Despite the availability of CFTR modulators that work for 90% of people with CF, many will not be able to take the medication due to side effects, lack of response, or other reasons. About 10% of the CF community have genetic mutations...

A New Approach to Treating CF-Associated Infections

by BEF

Clinical Trials

October 2, 2025

Post sponsored by Clarametyx While new therapies for cystic fibrosis (CF) are increasingly available to our community, many people with CF still face persistent and repeated infections that require the use of antibiotics. Now, researchers are developing a new approach to address these chronic infections by...

Patents Undermine Drug Innovation and Access by Gabby Couture

by BEF

Fellowship Blog

August 26, 2025

The U.S. patent system hinders genuine biomedical innovation by rewarding pharmaceutical companies for manipulating the patent process, rather than for developing legitimate treatments that benefit many. Policy reform is necessary to boost true innovation and lower drug prices.Pharmaceutical companies argue that high drug prices are...

Navigating a New Life: My Mental Health Story by Daelyn James

by BEF

Blog

August 26, 2025

At the age of four, I was told that I have Cystic Fibrosis and that I might not make it to twenty-one. At such a young age, comments like these were hard to process, but I still remained positive throughout my life. I always had...

Reforming Prior Authorization by Michael Woody

by BEF

Fellowship Blog

August 14, 2025

Imagine stepping into a hospital under the pretense of receiving care, yet what you get isn’t truly what you need, and you still need to pay for it. A 2017 research article written by Heather Lyu, et al, states that “Physicians reported that an interpolated...

Shared Decision Making: The Power of Collaborative Care by Maggie Barnidge

by BEF

Fellowship Blog

August 14, 2025

Healthcare is a two-way street. Historically, the physician-patient dynamic has involved a power hierarchy, with physicians taking the lead in medical decision-making. In our modern day, with overburdened healthcare systems and overworked physicians, the need for an open, reciprocal dialogue between patients and physicians is...

Author: BEF

Coverage Should Cover Care: Rethinking Insurance Benefit Design for People with Cystic Fibrosis

The Insurance Loopholes: Maximizers and Accumulators

Battling the Barriers: Identifying what Prevents People with Cystic Fibrosis from Participating in Clinical Trials & Research Studies

Teegan Sibble Refuses To Use Cystic Fibrosis As An Excuse

A Clinical Study for People with Cystic Fibrosis (CF) Who Have Specific Mutations in the CFTR Gene, Which Are the Cause of CF

A New Approach to Treating CF-Associated Infections

Patents Undermine Drug Innovation and Access by Gabby Couture

Navigating a New Life: My Mental Health Story by Daelyn James

Reforming Prior Authorization by Michael Woody

Shared Decision Making: The Power of Collaborative Care by Maggie Barnidge

Never miss an update. Subscribe to our emails!