Author: BEF

by Aine Stevens When I was in the middle of eighth grade, my health trajectory completely changed. I  was prescribed Trikafta, a Cystic Fibrosis (CF) Modulator that targets the defect in 90% of CF  patients. Before Trikafta, I was battling serious bacterial “superbugs” that decreased my...

Post sponsored by Clarametyx While new therapies for cystic fibrosis (CF) are increasingly available to our community, many people with CF still face persistent and repeated infections that require the use of antibiotics. Now, researchers are developing a new approach to address these chronic infections by...

The U.S. patent system hinders genuine biomedical innovation by rewarding pharmaceutical companies for manipulating the patent process, rather than for developing legitimate treatments that benefit many. Policy reform is necessary to boost true innovation and lower drug prices.Pharmaceutical companies argue that high drug prices are...

Imagine stepping into a hospital under the pretense of receiving care, yet what you get isn’t truly what you need, and you still need to pay for it. A 2017 research article written by Heather Lyu, et al, states that “Physicians reported that an interpolated...

  To round out CF Awareness and Mental Health Awareness month, we’re sharing an interview with Dr. Heather Bruschwein, a researcher and clinician with expertise in cystic fibrosis and mental health. Dr. Bruschwein is clinical health psychologist and an Associate professor of Psychiatry & Neurobehavioral Sciences...