Author: BEF

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CF Podcasts, Lung Transplants
September 5, 2018

In the latest CF Podcast, Jerry Cahill sits down to answer some of his colleague’s questions about life post-transplant, specifically about what happens during the one-year checkup. He explains how the doctors put him through a series of tests including, but not limited to, PFTs,...

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CF Podcasts, Exercise, Fitness & Nutrition
August 28, 2018

Jerry sat down with Faith Stone in his latest #cysticfibrosis podcast to discuss why she exercises. Faith is a 20 year old CFers who attends West Virginia University. Her parents always encouraged her and her sister to stay active while they were growing up, so...

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CF Podcasts
August 21, 2018

In the latest Cystic Fibrosis Podcast, Jerry speaks with Emily Kramer-Golinkoff about the role of a patient advocate organization in driving drug development in rare disease. Emily, a 33 year old who has a nonsense mutation of CF, is a co-founder of Emily’s Entourage, a 501...

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CF Podcasts, Exercise, Fitness & Nutrition
August 14, 2018

In his latest podcast, Jerry Cahill sat down with Ben James, a 19-year-old college student who was diagnosed with cystic fibrosis at 4 years old. Originally from Chester, VA, Ben now attends Mount Vernon Nazarene University in Ohio where he studies pre-medicine. When he isn’t...

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Adulthood and CF, CF Podcasts, Lung Transplants
July 11, 2018

In his latest podcast, Jerry Cahill sits down with Storm Johnson, a 22-year-old CFer who is currently recovering from a double lung transplant at Duke. Before his transplant, Storm’s lung function dropped to 8%. Tune in to hear about his love of cars, his recent engagement,...

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CF Podcasts, Lung Transplants
June 12, 2018

In this feature of The Path Forward with CF series, Dr. Hans-Willem Snoeck, Professor of Medicine (Microbiology and Immunology) at CUMC, sits down to discuss stem cell research as it relates to CF. Because lung cells regenerate and repair themselves regularly, researchers believe that – some...