BEF, Author at The Boomer Esiason Foundation

October 8, 2018

In the latest Cystic Fibrosis Podcast, Jerry met with Dylan Mortimer – a 38-year-old artist who lives in New York City with his wife and two sons. As a CF patient, Dylan uses his art to represent his journey with the disease – and to...

Cystic Fibrosis Podcast 197: Moving from Middle School to High School

by BEF

Adulthood and CF, CF Podcasts, Exercise, Fitness & Nutrition, Lifestyle Adjustments

October 2, 2018

In Jerry Cahill’s latest cystic fibrosis podcast, he spoke with Aidan Neville – a 13-year-old with CF who started 9th grade this year. He has two siblings, 22 cousins, and many more who make up his support system. While Aidan loves to stay active –...

Cystic Fibrosis Podcast 196: Managing CF as a Track Athlete

by BEF

CF Podcasts, Exercise, Fitness & Nutrition

September 24, 2018

In Jerry Cahill’s latest vodcast, we meet Teena Mobley – a Long Island University graduate and former track athlete. Diagnosed at 9 years old, Teena’s life changed as she adjusted to her new medication schedule while staying dedicated to fitness and health. She shares how...

Cystic Fibrosis Podcast 195: Summiting Mount Everest and Denali with Nick Talbot

by BEF

CF Podcasts, Exercise, Fitness & Nutrition

September 11, 2018

In the latest CF Podcast, Nick Talbot shares his incredibly unique journey with cystic fibrosis. From being diagnosed at the age of 13 to his latest climb – a trek up Denali, the highest point in North America – he constantly challenges himself to reach...

Cystic Fibrosis Podcast 194: One-year post-transplant checkup

by BEF

CF Podcasts, Lung Transplants

September 5, 2018

In the latest CF Podcast, Jerry Cahill sits down to answer some of his colleague’s questions about life post-transplant, specifically about what happens during the one-year checkup. He explains how the doctors put him through a series of tests including, but not limited to, PFTs,...

Cystic Fibrosis Podcast 193: Why do you exercise with Faith Stone?

by BEF

CF Podcasts, Exercise, Fitness & Nutrition

August 28, 2018

Jerry sat down with Faith Stone in his latest #cysticfibrosis podcast to discuss why she exercises. Faith is a 20 year old CFers who attends West Virginia University. Her parents always encouraged her and her sister to stay active while they were growing up, so...

Cystic Fibrosis Podcast 192: Emily’s Entourage

by BEF

CF Podcasts

August 21, 2018

In the latest Cystic Fibrosis Podcast, Jerry speaks with Emily Kramer-Golinkoff about the role of a patient advocate organization in driving drug development in rare disease. Emily, a 33 year old who has a nonsense mutation of CF, is a co-founder of Emily’s Entourage, a 501...

Cystic Fibrosis Podcast 191: ‘Why do you run?’ with Ben James

by BEF

CF Podcasts, Exercise, Fitness & Nutrition

August 14, 2018

In his latest podcast, Jerry Cahill sat down with Ben James, a 19-year-old college student who was diagnosed with cystic fibrosis at 4 years old. Originally from Chester, VA, Ben now attends Mount Vernon Nazarene University in Ohio where he studies pre-medicine. When he isn’t...

Cystic Fibrosis Podcast 190: Getting a Double Lung Transplant

by BEF

Adulthood and CF, CF Podcasts, Lung Transplants

July 11, 2018

In his latest podcast, Jerry Cahill sits down with Storm Johnson, a 22-year-old CFer who is currently recovering from a double lung transplant at Duke. Before his transplant, Storm’s lung function dropped to 8%. Tune in to hear about his love of cars, his recent engagement,...

Cystic Fibrosis Podcast 189: Immune Tolerance Research for Lung Transplants

by BEF

Adulthood and CF, CF Podcasts, Lung Transplants

June 19, 2018

In the last installment of The Path Forward with CF series, Dr. Megan Sykes, Director of the Columbia Center for Translational Immunology (CCTI) and Director of Research for the Transplant Initiative at Columbia University Irving Medical Center/NewYork-Presbyterian Hospital, sat down with Jerry Cahill to explain what her team...

Author: BEF

Cystic Fibrosis Podcast 198: The Art of Healing

Cystic Fibrosis Podcast 197: Moving from Middle School to High School

Cystic Fibrosis Podcast 196: Managing CF as a Track Athlete

Cystic Fibrosis Podcast 195: Summiting Mount Everest and Denali with Nick Talbot

Cystic Fibrosis Podcast 194: One-year post-transplant checkup

Cystic Fibrosis Podcast 193: Why do you exercise with Faith Stone?

Cystic Fibrosis Podcast 192: Emily’s Entourage

Cystic Fibrosis Podcast 191: ‘Why do you run?’ with Ben James

Cystic Fibrosis Podcast 190: Getting a Double Lung Transplant

Cystic Fibrosis Podcast 189: Immune Tolerance Research for Lung Transplants

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