The Cystic Fibrosis Foundation, on behalf of the CF community, has taken its concerns about a proposed rule that raises difficulty for people with CF to receive disability benefits to the Social Security Administration (SSA).
Recently, the SSA released a proposal that would change the way it determines whether people with respiratory diseases are eligible for disability benefits. The CF Foundation is concerned about the impact of the proposal on those people with CF who are dependent on benefits. Many people with CF receive disability benefits through the SSA Social Security Disability Insurance and Supplemental Security Income programs.
The Foundation has sent comments to the SSA reflecting its concerns, has mobilized CF care centers within its network, and forwarded a letter signed by more than 100 center directors in order to represent the best interests of the CF community. The CF Foundation will also work with key Congress members to ensure that the concerns of the CF community are addressed and will continue to advocate on behalf of all those with cystic fibrosis.
CF Foundation’s letter to the SSA
Letter to SSA from center directors
Source: Cystic Fibrosis Foundation