BEF, Author at The Boomer Esiason Foundation

A Clinical Study for People with Cystic Fibrosis (CF) Who Have Specific Mutations in the CFTR Gene, Which Are the Cause of CF

November 19, 2025

Sponsored by ReCode Therapeutics Despite the availability of CFTR modulators that work for 90% of people with CF, many will not be able to take the medication due to side effects, lack of response, or other reasons. About 10% of the CF community have genetic mutations...

A New Approach to Treating CF-Associated Infections

by BEF

Clinical Trials

October 2, 2025

Post sponsored by Clarametyx While new therapies for cystic fibrosis (CF) are increasingly available to our community, many people with CF still face persistent and repeated infections that require the use of antibiotics. Now, researchers are developing a new approach to address these chronic infections by...

Patents Undermine Drug Innovation and Access by Gabby Couture

by BEF

Fellowship Blog

August 26, 2025

The U.S. patent system hinders genuine biomedical innovation by rewarding pharmaceutical companies for manipulating the patent process, rather than for developing legitimate treatments that benefit many. Policy reform is necessary to boost true innovation and lower drug prices.Pharmaceutical companies argue that high drug prices are...

Navigating a New Life: My Mental Health Story by Daelyn James

by BEF

Blog

August 26, 2025

At the age of four, I was told that I have Cystic Fibrosis and that I might not make it to twenty-one. At such a young age, comments like these were hard to process, but I still remained positive throughout my life. I always had...

Reforming Prior Authorization by Michael Woody

by BEF

Fellowship Blog

August 14, 2025

Imagine stepping into a hospital under the pretense of receiving care, yet what you get isn’t truly what you need, and you still need to pay for it. A 2017 research article written by Heather Lyu, et al, states that “Physicians reported that an interpolated...

Shared Decision Making: The Power of Collaborative Care by Maggie Barnidge

by BEF

Fellowship Blog

August 14, 2025

Healthcare is a two-way street. Historically, the physician-patient dynamic has involved a power hierarchy, with physicians taking the lead in medical decision-making. In our modern day, with overburdened healthcare systems and overworked physicians, the need for an open, reciprocal dialogue between patients and physicians is...

CF and Mental Health, Patient and Provider Perspectives

by BEF

Blog

May 29, 2025

To round out CF Awareness and Mental Health Awareness month, we’re sharing an interview with Dr. Heather Bruschwein, a researcher and clinician with expertise in cystic fibrosis and mental health. Dr. Bruschwein is clinical health psychologist and an Associate professor of Psychiatry & Neurobehavioral Sciences...

The Importance of CF Research by Maria Clark

by BEF

Clinical Trials

May 7, 2025

For patients and their families, the journey with CF is relentless, but thanks to decades of dedicated scientific research, that journey has become one of increasing hope and progress. I have personally participated in various research studies at Children’s Hospital of Philadelphia and University of...

Antimicrobial Resistance by: Katherine Black

by BEF

Fellowship Blog

December 10, 2024

Antimicrobial Resistance Written by: Katherine BlackMore frequently, patients are coming to find that there are no treatment options to treat infections as common as an ear infection. As bacteria continue to evolve, the typical antibiotics prescribed to treat them are no longer effective. This terrifying scenario...

Incentivizing Innovation: A Better Approach to Drug Affordability by: Mac Rung

by BEF

Fellowship Blog

December 10, 2024

Incentivizing Innovation: A Better Approach to Drug Affordability Written by: Mac Rung If you take a look at the world's leading pharmaceutical companies – the majority are American. Despite this, public sentiment in the US towards pharmaceuticals seems to veer on the side of skepticism, leading...

Author: BEF

A Clinical Study for People with Cystic Fibrosis (CF) Who Have Specific Mutations in the CFTR Gene, Which Are the Cause of CF

A New Approach to Treating CF-Associated Infections

Patents Undermine Drug Innovation and Access by Gabby Couture

Navigating a New Life: My Mental Health Story by Daelyn James

Reforming Prior Authorization by Michael Woody

Shared Decision Making: The Power of Collaborative Care by Maggie Barnidge

CF and Mental Health, Patient and Provider Perspectives

The Importance of CF Research by Maria Clark

Antimicrobial Resistance by: Katherine Black

Incentivizing Innovation: A Better Approach to Drug Affordability by: Mac Rung

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