CF Community

March 19, 2019

Note: For information about clinical trials related to cystic fibrosis research, please visit our Research page. Eighty-four percent of parents say they don't know about opportunities for their children to participate in medical research; only 5 percent of children have participated in medical research across the...

Abbott Test Assists in CF Screening

by BEF

CF Community, CF News, Research

March 19, 2019

A diagnostic test from Abbott provides information used for CF carrier screening, newborn screening and confirmation of CF diagnoses in newborns and children. The Cystic Fibrosis Genotyping Assay looks for and examines mutations and variants in the cystic fibrosis transmembrane conductance regulator (CFTR) gene in human DNA....

A Heroic Group of Women Triumphing over Cystic Fibrosis

by BEF

CF Community, CF News, Transplants

March 19, 2019

The New York Daily News featured six heroic women who battle cystic fibrosis daily. These six friends share several special bonds, the two most notable being their shared disease and the survival of double lung transplants. This inspirational group met while searching online for CF...

New Podcast: Marc Smolowitz, Director of ‘The Power of Two’

by BEF

Boomer Esiason Foundation, CF Community, CF News, Transplants

March 19, 2019

In the latest podcast from the Boomer Esiason Foundation, director Marc Smolowitz discusses how “The Power of Two” documentary film is raising awareness of cystic fibrosis and organ donation. “The Power of Two” offers an intimate portrayal of the bond...

National Minority Donor Awareness Day Marks Fifteenth Anniversary on August 1

by BEF

CF Community, CF News, Transplants

March 19, 2019

August 1 marks the fifteenth anniversary of National Minority Donor Awareness Day, a special day set aside each year to call public attention to the critical need for people of African-American, Hispanic and other minority heritages to register as organ and tissue donors and share...

Teen with CF Educates Multicultural Populations About Organ Donation and Coping with Serious Illness

by BEF

CF Community, CF News, Transplants

March 19, 2019

Tyler D. Nelson, 17, knows all too well what it is to worry. At just two days old, Tyler was diagnosed with cystic fibrosis and is currently waiting for lung and liver transplants at Texas Children’s Hospital. But despite the challenges he faces, Tyler has managed to...

Irish Woman Receives Groundbreaking Lung Transplant

by BEF

CF Community, CF News, Transplants

March 19, 2019

A young Irish woman has made medical history after a double world-first operation to cure her lung condition. Becky Jones, 20, who is now out of intensive care following surgery, said: "I can't, for the life of me, remember feeling so well. The world is officially...

Cystic Fibrosis at the Presidential State of the Union VIA SCIENCEMAG.ORG

by BEF

CF Community, CF News, Policy, Research, Therapies

March 19, 2019

"Science gets its moment in Obama's 2015 State of the Union" VIA SCIENCEMAG.ORG By David Malakoff Science rarely makes a major appearance in the President’s annual State of the Union address. Tonight’s speech by President Barack Obama maintained that tradition – but he did take a few moments...

New Infection Prevention and Control Policy from the CF Foundation

by BEF

CF Community, CF News, Policy

March 19, 2019

Because cystic fibrosis puts the airways at risk for lung infection, the Cystic Fibrosis Foundation has an Infection Prevention and Control Policy in place to protect the health of people with CF at all Foundation events, meetings, and any other gathering places. Proven ways to prevent...

The CF Foundation Expresses Concern About Proposed Disability Benefit Changes

by BEF

CF Community, CF News, Policy

March 19, 2019

The Cystic Fibrosis Foundation, on behalf of the CF community, has taken its concerns about a proposed rule that raises difficulty for people with CF to receive disability benefits to the Social Security Administration (SSA). Recently, the SSA released a proposal that would change the way...

CF Community

Most Parents Unaware of Medical Research Opportunities for Their Kids

Abbott Test Assists in CF Screening

A Heroic Group of Women Triumphing over Cystic Fibrosis

New Podcast: Marc Smolowitz, Director of ‘The Power of Two’

National Minority Donor Awareness Day Marks Fifteenth Anniversary on August 1

Teen with CF Educates Multicultural Populations About Organ Donation and Coping with Serious Illness

Irish Woman Receives Groundbreaking Lung Transplant

Cystic Fibrosis at the Presidential State of the Union VIA SCIENCEMAG.ORG

New Infection Prevention and Control Policy from the CF Foundation

The CF Foundation Expresses Concern About Proposed Disability Benefit Changes

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