Dugan Reilly, a 22-year-old living with cystic fibrosis, discusses his college experience in the latest CF Podcast. He talks about struggling his freshman year – the first time he ever had to deal with CF on his own. From that, he learned to stick to...
For CF patients to remain healthy while away at school, they need to be independent with their care routine. Taking over parts of their routine earlier in life can set them up for future success. The Did You Know video series was created by the Boomer...
Along with the stress of being in a new environment, cystic fibrosis patients have to establish a relationship with a new CF doctor and center located closer to their school for routine care and emergencies. The Did You Know video series was created by the Boomer...
The Bike 2 Breathe team was back in action! For their 8th ride, Jerry and Em biked from New Hampshire to Coney Island, where they finished on Jerry’s 65th birthday. Tune in to learn how Bike 2 Breathe has inspired Jerry, Em, and countless others...
In Jerry’s latest podcast, we meet Beth Gerritsen – mother to Charlie, who has cystic fibrosis, and Willie, who does not. From raising her boys in the Virgin Islands to moving back to the states, she shares some insight into CF care in the VI,...
In his latest podcast, Jerry chatted with Charlie, 11 with CF, and his older brother Willie about the CF-sibling relationship. They talk about spending almost all of their time together, playing sports, their goals, and more. To his fellow CF patients, Charlie says, “Stay strong. Never...
In the latest CF Podcast, we meet Griffin Taylor, a 15-year-old who loves lacrosse and squash, is on his school’s robotics team, and is his class’s treasurer. During quarantine, Griffin started The Salty Scholar, a tutoring service to assist with virtual learning. When he saw...
In the latest CF Podcast, Jerry speaks with Dwight Cheu, CEO of ZEPHYRx, a home-based respiratory diagnostic testing and therapy that allows patients to actively manage and improve their own lung health through telehealth, video games, and virtual reality. Cheu describes the positives of the product:...
The You Cannot Fail Rare Disease podcast series was created so that the Boomer Esiason Foundation can shine a spotlight on other people and organizations in the rare disease community. In the second episode, Swapna Kakani discusses dealing with post-transplant lymphoproliferative disorder after her small intestine...
The You Cannot Fail Rare Disease podcast series was created so that the Boomer Esiason Foundation can shine a spotlight on other people and organizations in the rare disease community. In the first episode, Swapna Kakani shares her story about being born with a rare disease,...