The You Cannot Fail Rare Disease podcast series was created so that the Boomer Esiason Foundation can shine a spotlight on other people and organizations in the rare disease community. In the second episode, Swapna Kakani discusses dealing with post-transplant lymphoproliferative disorder after her small intestine...
The You Cannot Fail Rare Disease podcast series was created so that the Boomer Esiason Foundation can shine a spotlight on other people and organizations in the rare disease community. In the first episode, Swapna Kakani shares her story about being born with a rare disease,...
“I believe in enjoying life and living it to the fullest, having fun, and just enjoying time.” Brayden Walsh, a 16-year-old living with CF, joins Jerry Cahill’s CF Podcast to share his experience as one of the 10% of patients without modulators available for treatment. Even...
In the latest CF Podcast, Anthony Esposito, aka Espo 2, shares why he loves fitness and nutrition. While he doesn’t have CF himself, he wants to inspire all people to improve their health with his Youtube channel – and to convince people that burpees are...
“I love ice hockey because it really opens up my life and makes me stop thinking about cystic fibrosis and worrying about my health.” Meet Reilly Hoagland! Reilly was diagnosed at 4-years-old with cystic fibrosis, but has never let it stop him from living life the...
“I’ve always felt gratitude for the hospital staff, but this was over and above. We all know how contagious this is, and they knew that pretty early on. And yet, their job is to care for people and they did it regardless of their own...
In Jerry Cahill’s latest podcast, he spoke with 30-year-old Enid Katz, who was diagnosed with CF when she was 3. Enid’s passion in life is horses – which motivates her to stay healthy, active, and fit, even when she isn’t feeling her best. She shares...
Jerry Cahill spoke with Dr. Kelsey Finn about her book, “Having Cystic Fibrosis is a lot like being a Super Hero,” which relays information about CF so that kids and parents have a launching pad for more serious conversations. Dr. Finn’s goal is to support...
“I would tell a caregiver or a spouse of someone with CF that – all of those things you are feeling, the fatigue, the anger, the resentment, all of that is okay because we’ve all gone through that. It’s also really important for you, the...
“I would recommend that anyone with CF who can physically get up and move, to get up and move. I have found that exercise has changed my life completely, and without it, I don’t know where I would be at this point.” Meet Scott Marraffa, a...